Saturday, March 12, 2016

The Proof is in the Bowl

Documentation that sometimes I'm a fun, laid back mom - peanut butter for dinner! Actually, I was really desperate for the kids to eat and after refusing all of their favorite foods I resorted to a bowl of peanut butter for each. They only ate about three bites. I'm blaming their illnesses and I've been lenient with their pickiness of food while they've been sick so I guess it's time again for structure and consistency. I'm so tired of fixing food for every meal just to have it turned away and having to cook several more separate meals.

Sweet Girl

Tuesday, March 8, 2016

Update on Cora

In February Cora had her eyes tubes removed, pictured here. They're very skinny and about 1.5" long and the part with the little knobby end goes at the top of the tear duct. I got to take them home as a souvenir. The good news is that the tubes are out, the bad news is that they weren't effective. Her next option would be drilling a hole in the side of her nose through the nasal bone to let the tears drain through there. The ocular surgeon won't do them until she's about four years old so Dr. Whitehead said if it were his child he'd opt for another round or two of the eye tubes again to see if the duct will open up. Right now we are just waiting a few months to see what would be best for her. It would mean a little scar on both sides of her nose as they would drill through the skin.
Ugh, I don't even want to tell this story because it makes me so livid but here it is. I had the much anticipated doctor appointment with Cora's allergist in February. I had the blood test all done as they were going to test her again for her food allergies so we were anxious to hear those test results! This doctor is always 3-4 months out and is one of my favorites, I also wanted her opinion on Cora's allergic reaction to the acid reflux medication she's on.

I packed up both kids and off we went. Kimball asked for a snack but he never finished his lunch so I brought his PB&J with us and made him eat that first. He's become quite the picky eater and I was determined to win this mom war of not eating lunch. He happily ate the sandwich as I waited for the doctor to come into our exam room. As soon as Dr. Drain opened the door she asked if it was a PB&J sandwich, I said yes, and she said ok well I don't think I'm going to come in there today as I just found out I am allergic to peanut butter. I quickly put the sandwich away and gave hand sanitizer to the kids and myself. But the damage was done, the doctor didn't want to come in and I had to reschedule. UGH!! What kind of an idiot brings a PB&J sandwich to the allergist?! I wasn't even thinking about peanut butter being one of the top allergens and the risk that I was taking bringing that into the office, other patients could have gone into anaphylactic shock because of me! I was so disappointed and upset with myself.....I just wanted the test results and to know about this medication. I didn't want to have to wait another 3-4 months!!! What an idiot I am!

I was able to schedule a "phone appointment" with the doctor so I only had to wait another two weeks to get the test results instead of several months. GREAT NEWS!!!!! Cora tested negative for wheat AND egg AND beef!!! I'm still in shock, I didn't think that would happen before she was five years old. So the only allergy now is milk according to her blood. I have the ok to start slowly introducing these foods back into her diet to see how well she tolerates them. YAY!!!! As I started to hang up I apologized profusely for bringing the sandwich into her office and she said, "Well, thanks to you we now have signs up all around our office stating that."

We met with the neurologist last week and I couldn't wait for Cora to walk in there and strut her stuff! He was the one who told us that she'd never walk or talk and I was so anxious for her to prove him wrong. Of course he didn't remember saying that but he was pleased with her progress and we don't have to see him anymore! Another doctor crossed off our list!

The allergic reaction she's having from the acid reflux medicine was getting too severe so I had to take her off the medicine. Instead I started giving her raw apple cider vinegar, mixed with her juice, to help combat the reflux. Boy that is stinky stuff but she drank it well. Unfortunately, she started getting more raw excema spots on her body that weren't there before so I think she's intolerant to that as well. Hmmm! Now what do I do? Someone suggested a chiropractor so I took her to one of those but she was also a wellness doctor and did all sorts of voodoo, kooky stuff that didn't sit well with me. I'm not sure what to do now she she's not on anything or taking anything. I can't reintroduce wheat, egg, or beef back into her diet until I get this excema cleared up so I'm doing all that I can to help the rash.

Whew! I think that's all for now. In the next two months we have another slew of appointments that I'm also very anxious to hear how she's doing. I'm hoping her heart is still correcting itself and that she'll be a candidate for a throat surgery to help her talking. Fingers crossed but time will tell. We are so blessed to have this sweet, funny little girl!!!!!!!

Starting Them Young

The kids have been sick and cooped up in the house off and on for the last six weeks. Even though Kimball is still sick I made them go outside with me for some fresh air (note the pajamas). We picked up the garbage along the street around our house, with being only two blocks from the high school the students like to sit on this little ledge on the side of our property to smoke and eat. They leave a lot of crap behind that they should be taking with them. But it was a good time to teach the kids about littering, picking up after yourself, and leaving places better than you found them.

Patiently Waiting to Facetime Grandma

Vocal Point Concert

The Vocal Point a capella group came to Spokane and tickets were surprisingly cheap. It was a bit on the cheesy side with all the Mormon references but that's what you get with young BYU students. It was a nice evening of Mexican food with my main squeeze and singing along to their rendition of Frankie Valli's medley.

Such A Pettingill

The Day Has Come

Lance has dreamed of having a Nintendo buddy to play with. He's finally got one, they're like two peas in a pod.

EWU Physical Therapy Class

Cora had another opportunity to attend the physical therapy class for EWU graduate students. She absolutely adores Ginette (and I do too) and had so much fun. These two students were assigned to work with her and they worked on jumping and kicking.

G is for Goofy Goggles